June 1st is Worldwide LAM Awareness Day
Lymphangioleiomyomatosis (LAM) is a rare, progressive and frequently fatal lung disease that affects almost exclusively women, usually during their childbearing years. Symptoms may include shortness of breath, cough, collapsed lung, chest pains and/or fatigue.
Leaders from The LAM Foundation in the United States and the leader of LAM organizations in 17 other countries came together last month to declare June 1st as an annual international day of awareness. Because LAM is such a rare disease, it does not usually get the media attention that other, more commonly diagnosed diseases often get.
The LAM Foundation has knowledge of approximately 1600 cases of LAM worldwide, but it is estimated that there may be as many 250,000 – 300,000 women with LAM who are currently undiagnosed or misdiagnosed.