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6月1日确定为世界LAM(淋巴管肌瘤病)日

发布时间:2011-05-16来源:美国LAM基金会 作者:蓝梅中国

June 1st is Worldwide LAM Awareness Day

6月1日确定为世界LAM(淋巴管肌瘤病)日

 
       Lymphangioleiomyomatosis (LAM) is a rare, progressive and frequently fatal lung disease that affects almost exclusively women, usually during their childbearing years.  Symptoms may include shortness of breath, cough, collapsed lung, chest pains and/or fatigue.
  
       淋巴管平滑肌瘤病(LAM),发生于育龄期女性,是一种罕见的,渐进性的,常常是致命的肺部疾病。症状包括呼吸困难,咳嗽,肺塌陷,胸痛和疲劳。
  
       Leaders from The LAM Foundation in the United States and the leader of LAM organizations in 17 other countries came together last month to declare June 1st as an annual international day of awareness. Because LAM is such a rare disease, it does not usually get the media attention that other, more commonly diagnosed diseases often get.
       上个月,美国LAM基金会负责人和17个其他国家的LAM机构负责人共同宣布:每年6月1日定为国际LAM日。由于LAM是一种罕见疾病,它相对于其他容易被确诊的常见病来说通常不易引起媒体关注。
  
       The LAM Foundation has knowledge of approximately 1600 cases of LAM worldwide, but it is estimated that there may be as many 250,000 – 300,000 women with LAM who are currently undiagnosed or misdiagnosed.
  
       LAM基金会统计到的全世界范围内的病例数约1600例。但据估计,可能有多达25万-30万LAM患者没有被确诊或是被误诊。

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